Welcome to the Epidermoid Brain Tumor Society

The mission of Epidermoid Brain Tumor Society (EBTS) is to inform, educate, support and fund research for those affected by the epidermoid brain tumor. When a patient is faced with surgery for the epidermoid brain tumor, the best decision that one makes is finding a skull base neurosurgeon with extensive experience and  is critical for a successful outcome. With surgery, there is assault on cranial nerves in the skull base leaving possible deficits. The surgery can be life altering with deficits and many months/years of recuperation. EBTS educates and supports the patient and family on their journey regarding the symptoms, the diagnosis, and treatments by their doctors.

EBTS promotes awareness and advocates for research for the epidermoid brain tumor. The epidermoid brain tumor can reoccur for many patients and there is a limit to how many tumors and surgeries epidermoid patients can have before quality of life is threatened. Only with research can these brain tumors be eradicated.

Patient founded, EBTS is an incorporated, non-profit organization, recognized as such by the IRS, and is supported by contributions from individuals, friends, along with corporate grants.

Join us on Facebook to find support and information from many patients from around the world.

MAY IS BRAIN TUMOR AWARENESS MONTH!

We will be sharing different items with you all month. We encourage you this month only, if you have been helped in some way by our organization, that you may donate towards our goal, to bring awareness, education, and support to members, and fund raise towards research of this terrible but ‘benign’ tumor! Donations of ANY amount are welcome. Check our donate page on our website, mail a check for all of your donation to come to us, or use Paypal for your convenience! www.epidermoidbraintumorsociety.org/donate
Remember, we also have partnered with smile.amazon.com and Bravelets.com for all of those who shop online!
We thank all of our loyal members for your support, and continued support of other members!

News

On June 4th, EBTS member Matt Cordoza, Sacramento, Ca. will be riding his bike again around Lake Tahoe along with his wife, Kendra Larsen Cordoza, and friends in support of Shriner’s Hospitals for Children and the Epidermoid Brain Tumor Society.
https://www.gofundme.com/ShrinersNorCal1
In the past years, Matt has been very successful in his fundraising for charities. This year, 2017, Matt is designating that 75% of donation will go to Shriner’s Hospital for Children and 25% will go to the Epidermoid Brain Tumor Society. EBTS is excited about Matt’s effort and pleased to be a recipient of his 2017 fundraising. In preparation Matt is gearing up by creating a webpage for bike riders to join him in his charity ride. The name of the ride is America’s Most Beautiful Bike Ride (AMBBR).
Matt will use this webpage for tracking, communicating, and recruiting bike riders: https://www.strava.com/…/ambbr-shriners-and-ebts-stroke-and…
EBTS is not creating or directly involved with Matt’s Ride, however the Board has approved of the posting of Matt’s Go Fund Me Fundraiser.
Matt was diagnosed in 2003 at the age of 24 and had his first epidermoid surgery the same year. His second surgery was in 2008. At this surgery the surgeon accidentally cut the AICA artery causing a severe stroke. Matt, with therapy, had to relearn how to swallow, walk, and talk.
Before being diagnosed with the epidermoid, he had completed a bike ride around Lake Tahoe. With a passion for helping and giving to others, Matt decided that he would try bike riding again. With determination and many hurdles he finally worked his way up to riding his bike, and then he began to ride for a cause. Believing that a cause makes one stronger he kept pushing through years for his cause. He had two failed attempts in 2012 and 2013, but completed the full 100 miles in 2014. He has not stopped and in these years has raised funding for his favorite charities and has spread awareness.
This year he has picked Shriner’s Hospital for Children and Epidermoid Brain Tumor Society. In last year’s post for his charities, Matt writes “Never give up hope, there was a time when I was not sure I would walk again, last year I rode my bike over 4,000 miles.”
Wishing you the best on this years ride Matt!

General Disclaimer:  This website has been designed to provide information and education for the general public and healthcare professionals regarding the epidermoid brain tumor. EBTS does not endorse any commercial product, physician, surgical procedure, medical institution or its staff. EBTS encourages you to contact you own physician for any diagnosis or treatment, and do not change your treatment plan without consent from a physician.

~ EBTS Board