MAY IS BRAIN TUMOR AWARENESS MONTH!!
Our own Sam Kieffer, son of Kenny and Terri Kieffer made the news in his hometown, he is on a mission to bring awareness to EBTS and to fund-raise for research!! https://bettertheburgh.com/2018/05/06/sam-kieffer/
Welcome to the Epidermoid Brain Tumor Society
The mission of Epidermoid Brain Tumor Society (EBTS) is to inform, educate, support and fund research for those affected by the epidermoid brain tumor. When a patient is faced with surgery for the epidermoid brain tumor, the best decision that one makes is finding a skull base neurosurgeon with extensive experience and is critical for a successful outcome. With surgery, there is assault on cranial nerves in the skull base leaving possible deficits. The surgery can be life altering with deficits and many months/years of recuperation. EBTS educates and supports the patient and family on their journey regarding the symptoms, the diagnosis, and treatments by their doctors.
EBTS promotes awareness and advocates for research for the epidermoid brain tumor. The epidermoid brain tumor can reoccur for many patients and there is a limit to how many tumors and surgeries epidermoid patients can have before quality of life is threatened. Only with research can these brain tumors be eradicated.
Patient founded, EBTS is an incorporated, non-profit organization, recognized as such by the IRS, and is supported by contributions from individuals, friends, along with corporate grants.
The existence of the Epidermoid Brain Tumor Society (EBTS), formed officially as a 501(c)3 in 2012 with the goal to facilitate awareness, support and research. EBTS has grown and now has over 760 international members. We want and need research to improve patient outcomes and quality of life.
Join us on Facebook to find support and information from many patients from around the world.
General Disclaimer: This website has been designed to provide information and education for the general public and healthcare professionals regarding the epidermoid brain tumor. EBTS does not endorse any commercial product, physician, surgical procedure, medical institution or its staff. EBTS encourages you to contact you own physician for any diagnosis or treatment, and do not change your treatment plan without consent from your physician.
~ EBTS Board