Welcome to the Epidermoid Brain Tumor Society

The mission of Epidermoid Brain Tumor Society (EBTS) is to inform, educate, support and fund research for those affected by the epidermoid brain tumor. When a patient is faced with surgery for the epidermoid brain tumor, the best decision that one makes is finding a skull base neurosurgeon with extensive experience and  is critical for a successful outcome. With surgery, there is assault on cranial nerves in the skull base leaving possible deficits. The surgery can be life altering with deficits and many months/years of recuperation. EBTS educates and supports the patient and family on their journey regarding the symptoms, the diagnosis, and treatments by their doctors.

EBTS promotes awareness and advocates for research for the epidermoid brain tumor. The epidermoid brain tumor can reoccur for many patients and there is a limit to how many tumors and surgeries epidermoid patients can have before quality of life is threatened. Only with research can these brain tumors be eradicated.

Patient founded, EBTS is an incorporated, non-profit organization, recognized as such by the IRS, and is supported by contributions from individuals, friends, along with corporate grants.

Join us on Facebook to find support and information from many patients from around the world.

The epidermoid brain tumor is rare and benign. It forms very early in pregnancy, and its effects last a lifetime. Medical literature only has articles of surgery and a few articles that list it as a benign cyst or tumor. Thus, the existence of the Epidermoid Brain Tumor Society (EBTS), formed officially as a 501©3  in 2012 with the goal to facilitate awareness, support and research. EBTS has grown and now has over 760 international members. We want and need research to improve patient outcomes and quality of life. After surgery, there are many members with disabilities who never go back to their old life after surgery.  The skull base is very complicated with 12 cranial nerves that control all functions of the body from swallowing, walking, talking, and breathing.

Shopping online? Consider shopping  with Amazon Smile, where Amazon donates to EBTS, just because you shop with Amazon Smile!   

The mission of EBTS is awareness, support and research. EBTS has joined with Amazon Smile to make this happen for our members and their families!  It is an ideal situation.  We appreciate the donations from  Amazon Smile  to our organization, as we encourage members to use http://smile.amazon.com/ch/46-2856696   each time they shop!  We are an all-volunteer organization, and all donations are being collected to fund our own research into the epidermoid brain tumor. Amazon Smile works for EBTS.  Thank you, Amazon Smile!

General Disclaimer:  This website has been designed to provide information and education for the general public and healthcare professionals regarding the epidermoid brain tumor. EBTS does not endorse any commercial product, physician, surgical procedure, medical institution or its staff. EBTS encourages you to contact you own physician for any diagnosis or treatment, and do not change your treatment plan without consent from a physician.

~ EBTS Board

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