Welcome to the Epidermoid Brain Tumor Society
The mission of Epidermoid Brain Tumor Society (EBTS) is to inform, educate, support and fund research for those affected by the epidermoid brain tumor. When a patient is faced with surgery for the epidermoid brain tumor, the best decision that one makes is finding a skull base neurosurgeon with extensive experience and is critical for a successful outcome. With surgery, there is assault on cranial nerves in the skull base leaving possible deficits. The surgery can be life altering with deficits and many months/years of recuperation. EBTS educates and supports the patient and family on their journey regarding the symptoms, the diagnosis, and treatments by their doctors.
EBTS promotes awareness and advocates for research for the epidermoid brain tumor. The epidermoid brain tumor can reoccur for many patients and there is a limit to how many tumors and surgeries epidermoid patients can have before quality of life is threatened. Only with research can these brain tumors be eradicated.
Patient founded, EBTS is an incorporated, non-profit organization, recognized as such by the IRS, and is supported by contributions from individuals, friends, along with corporate grants.
Join us on Facebook to find support and information from many patients from around the world.
General Disclaimer: This website has been designed to provide information and education for the general public and healthcare professionals regarding the epidermoid brain tumor. EBTS does not endorse any commercial product, physician, surgical procedure, medical institution or its staff. EBTS encourages you to contact you own physician for any diagnosis or treatment, and do not change your treatment plan without consent from a physician.
EBTS dedicates our 3rd Annual
May Brain Tumor Awareness Month
to Dr. Chris Chiou, Michigan.
Dr. Chris Chiou recently finished his medical residency in Family Practice in March, 2016, after placing it on hold at the beginning of his 3rd year. His life was interrupted by the epidermoid brain tumor. In March, 2013, Dr. Chiou was diagnosed with a 4.5 cm brain mass in the posterior fossa. The next week, the mass was removed in a 16 hour surgery. The mass was identified as an epidermoid brain tumor. Since surgery, Dr. Chiou went from fully functional to disabled overnight from post-surgical deficits. These past years, Dr. Chiou has been challenged with deficits from the epidermoid surgery, yet he never gave up. With determination and courage, he reentered his medical residency and graduated in March, 2016.
Writing in his recent column, “House Call”, he wrote of re-entrance back to his life being rocky and continues to be an ongoing journey, but one that was necessary. It took 20 months before Dr. Chiou was back in his residency. Dr. Chiou’s personal story is found in his introduction on our “House Call” Blog page:
In a House Call article written especially for our EBTS membership, Dr. Chiou, in expressing thoughts of what or who is to blame for the epidermoid brain tumor, relates to members that his condition is NO-ONE’S fault. “I just happened to win the lottery for getting a congenital brain mass – because the mass and its location are so rare, I have had difficulty coming up with studies or articles that cite the chance of having this type of mass (with the ensuing symptoms), but according to my calculations, less than one in a million people will have this mass in their posterior fossa with subsequent Posterior Fossa Syndrome. I can either search for someone or something to blame this on, or just cough it up to luck (good or bad). After much thought, I’ve realized it really doesn’t matter whose fault it is. After a tragedy, our thoughts should not be, Who’s to blame? It ought to be, How can this be prevented in the future? How can others avoid the same mishap? Instead of looking for someone or something to blame, would it not be more productive to find the source of the problem?”