History

EBTS as a brain tumor support organization is a small patient group compared to the more common brain tumors. First, the epidermoid is a skull base brain tumor and second, we are very rare, occurring as only .02 – 1.8% of all brain tumors diagnosed in a year. Many EBTS individuals have never met another patient with the same brain tumor! At the time of the first support group founded by two patients diagnosed with the epidermoid brain tumor, there had been no information or support available for the benign, congenital, and rare epidermoid. This patient group was started as an email list in 1999 and later became an on line group sharing knowledge and experience. With difficulties of server website maintenance, the first organization struggled for many years. During this period, supportive members of the email list came to the conclusion that a new direction should begin. Thus the formation of a new organization with a new direction was formed solely to seek funding for specific epidermoid research, awareness, education, and for professional maintenance of the organization website. EBTS was launched May 1, 2012. IRS status as a 501(c)3 was obtained December  2012.